RESUMEN
Persons living with dementia (PLWD) are at increased risk for coronavirus disease 2019 (COVID-19) and poorer outcomes if they contract the disease. COVID-19 may also change and exacerbate usual stresses of family caregiving. The current qualitative descriptive study examined 14 family care partners' (FCPs) experiences and perspectives on how the COVID-19 pandemic impacted them, their care recipients, and their caregiving for their care recipients. Thematic analysis of interviews generated five themes: Cautious of COVID-19 Exposure, Challenges of Balancing COVID-19 Restrictions With Caregiving, Shared Loneliness, Functional Decline, and Communication Challenges With PLWD and Health Care Professionals (HCPs). FCPs are integral to the care of PLWD across care settings. The time is now to plan for changes in policy that will safely maintain FCPs' visitation with their care recipients with dementia and allow for partnering with HCPs to avoid the long-lasting negative effects on older adults' health and function. [Journal of Gerontological Nursing, 49(3), 27-33.].
Asunto(s)
COVID-19 , Demencia , Humanos , Anciano , Cuidadores , Pandemias , ComunicaciónRESUMEN
Acute and chronic disease management continues to shift toward a health care in the home model, yet literature discussing continuity of home-based care services during public health emergencies, such as infectious disease pandemics, is scant. In the current study, we used semi-structured telephone interviews with 27 home-based care providers (HBCPs) from Medicare-certified home health care agencies located in eight U.S. counties to explore older adults' decision making around home-based care service continuation during the coronavirus disease 2019 (COVID-19) pandemic. Four themes emerged, including two related to older adults' decision making around refusal of in-home care and two related to HBCPs' responses to care refusals. Fear of COVID-19 infection motivated older adults to make care-related decisions that were incongruent with their health needs, including refusal of care in the home, despite receiving education from HBCPs. These data highlight a need for tools to help HBCPs better support patients through decision-making processes about care continuation during COVID-19 and future infectious disease pandemics. [Journal of Gerontological Nursing, 49(1), 35-41.].
Asunto(s)
COVID-19 , Enfermedades Transmisibles , Servicios de Atención de Salud a Domicilio , Humanos , Anciano , Estados Unidos/epidemiología , Pandemias , Medicare , Negativa del Paciente al TratamientoRESUMEN
[...]workplace concerns, such as low staffing levels, low morale, and subsequent burnout, are pushing nurses out of health care entirely. In those settings, resources are limited and have been for decades. [...]complexity characterizes the needs of all residents under these nurses' care. [...]nursing homes specifically need policy and practice changes to optimize scope of practice and provide around-the-clock professional nurse leadership. Other local efforts include nursing schools offering robust clinical rotations in nursing homes and programs providing opportunities to students to work in long-term care facilities.